Last week we had an appointment with a hand surgeon, having been referred by Starbaby's paediatrician.
She was really lovely, and carefully examined his hands and arms. Unfortunately she didn't have any clear answers for us - we were really hoping the appointment might be the start of getting to the bottom of the things Starbaby is dealing with other than talipes. She thinks (which I felt already) that he has muscle imbalances across as a lot of his body - some muscles overly strong, and some very weak. It's particularly apparent in his hands, arms and neck. Unfortunately there's no clear answer as to why it's the case, and therefore we have no idea of the long term prognosis. She talked of MRIs when he's a bit older, seeing a geneticist... but while he's young, there's going to be a lot more 'wait and see'.
She has asked for our next appointment to be with the specialist in congenital (from birth) hand issues, and he may have some more words of wisdom. Fingers crossed. It's hard living with these 'unknowns' because my mind just thinks of the worst case scenarios.
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