Friday 18 October 2013

Dates

This week we've received dates for two upcoming big-horrible-scary-things-under-general-anaesthetic aka Starbaby's tenotomy (plus a little more) and his MRI scan.

25th November is tendon surgery day and 11th December is MRI day. I look forward to them both being over... really nervous about my precious boy being anaesthetised/sedated twice in just a few weeks. I desperately hope it's worse for him than it is for me.

Other than that, things are ticking along quite nicely here and we're very much enjoying having a good chunk of time out of casts. To think that when Starbaby had he week break from casts about a month in, I thought to myself on the last day "this will be the last day he isn't in casts or BnBs to sleep until his 5th birthday" - how wrong I was! But I'm feeling fairly accepting of the fact our journey is a very bumpy one (after a fair period of feeling royally, um, unhappy about it all, and not in the least bit accepting) and am mostly able to appreciate the good things. Like baths, cast-free snuggles, and no "how did he break his leg?" enquiries from random members of the public.

Starbaby is now a pro at sitting up on his own - he amazed us all by sitting for the first time at 6 months and a few days, and is loving being upright and seeing the world from a different angle. I'm so, so proud of him. He still has significant muscle weakness, but just watching him sit, you can see how hard he is working to keep himself upright and steady - he's such a determined boy. I hope that the fact he's having to work hard to overcome some challenges will actually result in personality traits that will serve him well in life.

He really is totally and utterly amazing. I am head over heels in love with him, and fall further every single day.