Another Delay

I guess I shouldn't be surprised, really... Starbaby's talipes journey has been far from smooth!

He's been a very healthy little guy since getting home from NICU at a week old... a very brief tummy bug (which everyone in the family shared) and a cold a month or two ago. But this week he's gone down with a stonker of a viral infecion, with an awful cough and difficulties breathing. So the hospital have had to postpone his op, which was due to be on Monday 25th. It's frustrating that he's got poorly just at this point, but postponing the op is totally the right thing to do - I don't want any risks taken with my precious boy.

He has been cast free for 8 weeks now, and the earliest his op will be rescheduled is 3 weeks from now, when he'll be nearly 9 months old. After it will follow several weeks of casts, then he'll go into BnBs (finally), probably at around 11 months old. It's so, so frustrating to have had so many issues... most babies do the '3 months full time' period between the ages of about 2/3 and 5/6 months, so that once they're starting to get mobile, they are only wearing them at night. Starbaby will be close to 1 before he even gets into BnBs at all! He obviously has other issues which impact on his mobility (mainly his weak arm/hand muscles) but even so, he is rolling around the room like a pro and getting closer to a sort of of wonky commando crawling. I do worry about how he'll cope, going into BnBs at such a late age... but at the same time, I feel pretty sure he'll amaze me with how he takes it in his stride, as he generally seems to.

He's really quite poorly at the moment... struggling a fair bit with breathing, although he's OK if he's calm. Thank goodness for breastfeeding... last night he was getting upset and that was making him cough then he was really struggling to breathe... I managed to get him to feed and that calmed him instantly.

He's been very floppy since getting poorly on Sunday night... it's a little scary to see such regression in his muscle ability, but I am 99% sure it is related to being under the weather, so should only be temporary. It's not much fun, though... some muscular conditions are progressive so at some point there is a regression in the muscles' abilities... I hope that never happens for my Starbaby but I know it's a possibility. He's been struggling to sit upright (even with support), despite having been sitting for nearly 2 months now, and he's not been able to hold onto things properly, even with his 'good' hand.

Hopefully he'll be better soon. For now, it's lots of feeding, mummy snuggles and distraction.