Tuesday, 31 December 2013

Goto Firefly Seat

I've got a lot to catch up on! I've downloaded an app to watermark my photos from my phone so I think I'll try to phone-update more.

Starbaby is doing amazingly. We're continuing to work hard on physio and over Christmas he has learnt to clap, wave, shake his head, copy things (generally head-shaking!), say mamama and bababa... and most excitingly, get himself from lying to sitting 'sideways' (our current main physio focus) and push himself up into a near-crawling position then to sitting from there. All that happened within the space of just over a week! Which explains why he's hardly been sleeping. ;)

Starbaby's foot op is next Monday. 6 days away. I'm really scared but just trying to picture it being over. It's going to be a very long day... we need to leave home at 5.30am to get to the hospital for 7.30am.

We have recently spent some of Starbaby's DLA money on a goto firefly seat. Due to his low muscle tone he can't sit upright in a chair, shopping trolley etc for more than a minute or two. The seat is amazing! You clip it on, clip Starbaby in with the 5 point harness and voila! He sits so stably and comfortably. I'm so happy we took the plunge and got it.